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 Rheumatoid arthritis & Fibromyalgia

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angelface
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PostSubject: LUPUS   Thu 24 Feb 2011, 1:45 am

Hi ALL

Thanks for all the info and messages. I am so sorry to hear you are in so much pain some of you.

I have lupus and was diagnosed about 5months ago. I just have my sleeve done. I am not allowed to take my lupus meds for a few weeks till my tummy settles as I have had terrible loose bowels which empty at everything I eat and the meds have to be taken with food or they upset your tummy too.

I am still trying to settle into my first week of fluids adn without the meds I am very tired. I hope it gets better from here.

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Yesnomaybe
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Mon 26 Apr 2010, 6:01 am

I know this thread hasn't been posted in for a while, but just thought I'd pop in and put my hand up as another member with Fibromyalgia. I was diagnosed about 8 years ago and I was sure that I had it for years before that. I remember, when I was at high school, if someone even tapped me on the arm I'd be yelling.

I feel like I've had a flare up for about 8 months now. Even now, knowing what I have, I feel so lazy. I can want to go back to bed after a shower. Getting dressed can exhaust me. I have a rest while cooking tea. The list goes on.

It will certainly help having almost half my excess weight off me, I hope I can do more.

It's lovely to see all these sleevers with their new lives. I can't wait to be one of them. :-)
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Janey
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Wed 16 Sep 2009, 1:49 am

Good luck with the Stilnox Mapmar. Don't worry about the after effects. I find it doesn't make me the least bit groggy the next day even when I have to resort to taking 2. It's brilliant in that regard.

Sleep well.

Hugs,
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mapmar
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Tue 15 Sep 2009, 1:45 pm

Yes Janey it is stillnox but "touch wood" I have not had any issues with it! I only take either 1/2 tablet or a full tablet if I know I have a really long day at work the next day....
The medication I am allergic to is Endep! amongst other allergies I have a mile long!
I have had shoulder pain a few weeks ago, stabbing shooting pain which nearly sent me around the twist.... had physio twice per week and only last week the muscles were good, so physio said "definitely fibro!" bugger I said my first bout.... So hopefully it was only a mild bout! Lisa, your bout sounds terrible! Not looking forward if I get that bad... yeeks! Fingers crossed you find something that works for you!
Heres to a good nights sleep for all of us! Hopefully we don't look like this in the morning -
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lisab
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Tue 15 Sep 2009, 12:03 pm

Hi Mapmar,
I was diagnosed with fibromyalgia and early stages of rheumatoid arthritis about 4mths ago, until then I thought I was going mad... I am getting over a bad flair up at the moment (it was caused by having surgery to have the band out) and I am really fed up with being in constant pain. I think the worst part of having fibromyalgia is that you dont look like you have anything wrong with you so people find it very hard to understand what we are going through. I find it very difficult to get to sleep and usually only manage to get about 4 hrs sleep a night if I am lucky and I know that lack of sleep definately does make the pains alot worse. I take Endep in the evening and a couple of Mersyndol to help with the pain when ever I need them and when it gets really bad I have a couple of perscription pain killers that I can take, I practically live on paracetemol and codeine.. My Surgeon is going to arrange for me to have extra pain meds available to me after I am sleeved to take home with me from hospital as I have found it very difficult after my last surgery.....
I hope the extra anti-depressants and the sleeping tablets help you, also get your Vitamin D levels checked as my specialist said that low levels can also increase the fibromyalgia flare ups..

Good Luck

Lisab
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Janey
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Tue 15 Sep 2009, 11:42 am

Good luck with it all Mapmar. Let us know how you get on with the new tablets.

Stilnox I presume? Be careful as it can make you do funny things. I take it regularly and find that I get incredibly hungry once I've taken it and one morning I woke up with food wrappers around me. I am not joking. I got up and raided the pantry and I can't remember doing it. When taking it I now take a snack to bed and eat it immediately after swallowing the tablet and this seems to have solved the problem. I looked at it as funny and chose to laugh about it but it can play with your mind. If it's not Stilnox then have a good laugh at my plight, ignore all of the above and have a good night's sleep.

Hugs,
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mapmar
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Tue 15 Sep 2009, 10:22 am

I just have been through my first bout of fibromyalgia .... I was diagnosed last year but only had a bout which I am just getting over. I went to the GP yesterday to get my referral for the surgeon and mentioned it. She said I could take this medication which could help.... only one thing.... I am allergic to it!!! So she uped my anti-depressants and gave me a script for some sleeping tablets as I noticed this last week or so, if I get a good night's sleep I am better the next day. Fingers crossed I don't flare for awhile... it is nearly over... still a bit achy!
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Jezzybel
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Wed 20 Aug 2008, 4:12 pm

Hey LavenderRose,
I'm sorry to hear you're going through all that! My mum has Lupus, originally she wanted a band but was told it could be hazardous for her to have the port (for the same reason you mentioned, immune system attacking foreign body). She also has Sympathetic Reflex Dystrophy, which is a chronic pain condition, so her sleeve was still fairly risky. Happy to say though, she's had no problems with her sleeve (she's now about 6 weeks post-op), and she's lost around 15kg, which is already easing a bit of her joint pain from the lupus. It was discovered in my pre-op blood tests that I have the markers for an auto-immune disease as well, so I'm sposed to be getting that looked into now... I'm a bit scared to though, really.
Anyway, all the best, I hope your surgery helps you too. Hang in there!
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Admin
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Tue 19 Aug 2008, 1:23 am

Wow Miss Lavenderrose,
I am sorry to hear that you are unwell. I had no idea that the band could react so badly with those illnesses, however I did know that the band can be rejected. I dont have those illnesses you are talking about, but I do know what it is like to have a band in, and not lose much weight. I dont want to bag the band, as I am sure you dont either, but my experience was very painful and scary.
All I can say to you (And I was just thinking about this exact thing yesterday!!) is that I had no idea how unhealthy I truly was, until after I was sleeved. My band was removed, which in itself was a releif for me, but then I was sleeved, and I cant explain to you how healthy I am feeling!! My skin is clearing, my weight is dropping, and I feel so much better as a body mind and soul. I wish I could explain to you better, but I just cant. I really hope that you start to feel healthy again, and get those illness back under control.
Please let us know how you go.
Hugs,
Hayley
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chrisbychic
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PostSubject: Re: Rheumatoid arthritis & Fibromyalgia   Mon 18 Aug 2008, 9:57 pm

Hi Lavendar Rose
I'm sorry that you're in so much pain, and December seems to far away to have to wait to have your surgery when you're in that much pain, too.
I do not have RA, but I do have OA and I have fibromyalgia too - so does my mum.
I'm guess I'm lucky because my FM is nowhere near as bad as my mum's got, but maybe that's because I have a lot of other health issues and go to the doc regularly, and the chiropractor, and the osteopath, and the massage therapist...whereas my mum won't even get to the doc until way past when she should.
The drug names you use are not familiar to me, but I do know that there are some anti-depressants that have been prescribed for fibromyalgia that have been very helpful. Mum uses Prothiadin and swears by it. I take a different anti-depressant for depression, so maybe that's another reason I didn't get as bad as her.
The other thing I have noticed is that my pain level has dropped considerably over the last 6 months, when I have been steadily losing weight. I'm now 37kg lighter than I was in January, and my pain meds have been reduced considerably.
Good luck on your journey, Lavendar Rose.
Chris
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LavenderRose
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PostSubject: Rheumatoid arthritis & Fibromyalgia   Mon 18 Aug 2008, 6:40 pm

I have both RA and FMS. I didn't find out I had these issues until after I got my band. Unfortunately, the band does not work well with either of these illnesses. Since RA is an auto-immuned disease and already is attacking my body, the device/band is making my immuned system work overtime because it sees this band as in intruder. Therefore, I am in more pain due to more inflammation that my overactive immuned system is causing. This is the reason my surgeon said he wanted to do the sleeve and remove my band. Even before the band was showing painful evidence of causing problems for my RA, it wasn't really making me lose that much weight. I was measuring my food to no more then a cup at each meal, and still very little weight loss. I lost about 25 lbs total with the band. Then when the band started interfering with my RA and the pain and stiffness became so much worse, I could barely walk, so exercising was not an option. Especially not to the point of burning any true calories. I do a DVD on walking, so that helps and I stretch often.
I have pain from head to toe. Some days are better then others and some are not as good...then there are some ugly days with pain and stiffness.

I am truely hoping once I can get the band removed and my sleeve done things will get a lot easier. I am getting ready to start a semester in college next week until mid December. Then I can get my sleeve/band removal surgery scheduled for hopefully no later then 29/12/2008. I need to return to school about 20/1/2009. I am going to take one class on campus and one class on line after my surgery. I don't want to over do it.

At this time I give myself Enbrel injections once per week for my RA and I take pain meds to help with the pain. I am allergic to high dose Ibuprophen (sp?) So meds in that class do not help me because I break out in hives. I don't feel the Enbrel is working either. I have been on Enbrel for 3 months so far.

I hope after my band is removed and the sleeve assists me in losing weight I will feel better and my joints won't hurt as bad. Though, my doctor told me that even if I was thin that RA will still try to attack my body, but the weight loss will make it easier on my knees. It isn't like Oasteoarthritis that normally comes with age. They both are painful.

Fibromyalgia is a disorder that makes your muscle sore and weak. I sometimes feel like I have the flu, but I will have no tempeture or only a low one. I ache and get muscle spasms...mostly in my legs and my legs get these very painful knots in them that only a profession massage therapist should rub and work out...that is what I was told by a couple docs because I was trying to rub them out myself, but causing more pain.

I just want to be healthy and not in so much pain and I am praying that the sleeve helps me lose a good amount of weight to help with these problems. I know I will work my butt off...literally...hehehe... after I get the sleeve. I am dieting now. Just started 3 weeks ago. I have made my food portions smaller. About a cup to a cup and a half for each meal. I do not know if my surgeon will have me do a liquid diet before surgery for the sleeve. I know for the band he didn't, but the sleeve is a totally different type of surgery.

Does anyone else have these illnesses?
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