Australian Gastric Sleeve Support Forum
 
HomeRegisterLog in

Share | 
 

 Polycystic Kidney Disease

Go down 
AuthorMessage
Box of Jewels
Part of the furniture
avatar

Female
Number of posts : 637
Location : Nth Qld
Registration date : 2015-01-14

PostSubject: Re: Polycystic Kidney Disease   Sun 15 May 2016, 5:55 am

Sounds like you are doing really well post op!  Keep up the good work!
Back to top Go down
goldilolz
Newbie


Female
Number of posts : 7
Location : Perth
Registration date : 2016-03-24

PostSubject: Re: Polycystic Kidney Disease   Sun 15 May 2016, 1:54 am

Doesn't look like anyone here is in the same situation as I am, maybe this might help someone else in future. I see the renal specialist in a month and a half, I'll be able to get a better idea of how the surgery will impact my kidneys in future. I'd been contemplating the gastric sleeve long before i was diagnosed with kidney disease, that was just the kick i needed to go ahead with it.

My experience so far.
4 days post op at the moment, nurses said i tolerated the pain very well considering the first 5 hours after surgery i wasn't getting the pain meds from the magic button cause my IV had moved, the fluids from the drip were going into surrounding tissue/muscles my arm had swollen considerably. At 11:30 that night after multiple attempts to find a new vein my surgeon came back to the hospital to put a central line near my collarbone. After that i had to wait for x-rays to confirm it was in the right spot, it took about half an hour before i was able to be reconnected and finally get the magic button to work. First night was still a bit rough in the special nursing unit, 3 other patients were with me, one coughing up blood after a jaw surgery and another throwing up everytime the nurses moved her. I felt sorry for them, this was my first time in hospital i was expecting to react badly to everything but i didn't throw up once and still haven't.
I managed to quickly progress from 30ml of water the first night to a glass the next morning, even having apple juice for breakfast then a broth for lunch they let me try pureed fruits for dinner, didn't have much of it but i didn't have any issues. The following morning however i did start to have issues with anything that wasn't hot, ever sip of water or apple juice was uncomfortable and my stomach groaned and bubbled, the bubbling was the worst bit, the Dr wanted me drinking a glass every hour, i did have to force myself a bit cause I wanted to go home. The bubbles continued after I got home, honestly i haven't been able to stomach much water at all, but I tried to keep my liquids up with everything else and walked around when i felt particularly uncomfortable. Luckily it started improving yesterday so i managed twice as much water as the day before, I've even flavoured it with a low sugar cordial so i won't get sick of water. I haven't been sticking closely to the dietitians recommendation but as close as i can as long as it's comfortable. I've been having half portions of optifast with milk twice a day, packet soup which helped keep my water up and my own pureed apple, so far i haven't had veges, I've got V8 juice in the fridge that I'll try today, also making sweet potato soup from scratch tonight, have to find more ways to have veges.
Pain afterwards hasn't been too bad, had to take some stronger oral ones after the magic button went away, only had to have that twice, been managing on paracetamol since i got out of hospital. The incisions sting from time to time but that depends on what I'm doing and doesn't last long, getting up and down has been getting easier, worst part has been a hot pain under my ribs, i can only guess that's still some trapped gas. Yesterday i was able to roll onto my right side for the first time, this morning to my left, I'm a side or stomach sleeper so this should make sleeping easier.
My boyfriend has taken time off to care for me, keep me company, we haven't driven each other nuts yet. He's been helping me with little things, if i disappear for awhile he checks up on me, mainly to make sure I'm not doing something i shouldn't as i get bored easily and can't sit still for to long.
So far so good.
I know i shouldn't jump on the scales so early but i did. At my highest i was 113.6kg in July 2015, managed to get down to 102.3 in Dec 2015 through a HBF/friendlies chemist program, regained to 108.2 in Apr, was 106.8 2 days before surgery today 102.2. Goal weight is late is early 70s Dr said i a should probably be able to get past that to mid 60s. In the week leading up to the surgery i raided my parents caravans which we use as storage, for all the clothes that uses to fit me that i had kept just incase i lost weight again. I've got 3 48l boxes in the wardrobe at the moment some of it i won't me see till summer but one box is all jeans i cant wait to fit back into those. Most of the clothes are from 5 years ago, they are all medium, 12-14 that was when i was in my 80s kg. I can remember a time i was lighter than that.

Thanks for ready, I'll add more after the renal specialist.
Back to top Go down
goldilolz
Newbie


Female
Number of posts : 7
Location : Perth
Registration date : 2016-03-24

PostSubject: Polycystic Kidney Disease   Thu 24 Mar 2016, 2:32 pm


I'm 28 and recently diagnosed with polycystic kidney disease. Luckily i still have full kidney function and intend to do my best to keep it that way for as long as possible. With a BMI of 38 i started investigating weightloss surgery. The surgeon i have found agrees that significant weigh loss can increase my chances of delaying symptoms of polycystic kidney disease, increasing chances of a successful kidney transplant if needed in future.

Today we picked my surgery date 10th of May, only 47 days.

If you have polycystic kidney disease, or know of someone who does is I'd love to hear about your/their experience.

Thanks
Back to top Go down
Sponsored content




PostSubject: Re: Polycystic Kidney Disease   

Back to top Go down
 
Polycystic Kidney Disease
Back to top 
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
Gastric Sleeve Support :: Dietitians, Dieting, Exercising and more :: Diet, Exercise and more :: Other Health Issues-
Jump to: