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 Any other Fibromyalgia people here?

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indigo
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Registration date : 2015-10-18

PostSubject: Re: Any other Fibromyalgia people here?   Mon 16 May 2016, 4:49 am

Just bumping this up. I have fibro so interested in this thread. 

My fibre pain has greatly improved since being sleeved and 40kg weight loss. 
For some reason my myofacial pain has flared - maybe because Im much more active than I have been in years. The good thing is the pain is more of an annoyance rather than "pain"

indigo
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denzel
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Location : Perth
Registration date : 2014-12-26

PostSubject: Fibromyalagia/ME/CFS   Fri 02 Jan 2015, 10:10 am

Hi all,

I developed ME/CFS in 1996 following a severe respiratory illness.
Mine is 'typical' in how it developed and symptoms, including the 'post-exertional malaise'.

I was also diagnosed with Fibromyalgia this year and am now on Cymbalta/duloxetine 60 mg, which then affected my sleep (ie I didn't sleep - this was proven on an overnight hospital based sleep study).
interestingly the sleep study did show alpha wave intusion into delta, a finding sometimes seen in people with ME/CFS/Fibromyalgia.
I now also take Mirtazapine 7.5 mg at night along with magnesium and a valerian/hops/passion flower supplements to help me sleep.

The Duloxetine has helped heaps with the pain.
(I also  take numerous paracetamol during the day + curcumin supplement + low dose codeine/anti inflammatory as needed).

Unfortunately my health also deteriorated from last year onwards, and in October my part time (I couldn't do full time and was very much struggling to do part time) job was terminated by my employer.  My short term memory is abysmal, e.g. by the time I get to the afternoon whatever I did in the morning was like something in the far distant past.  But that has it's benefits!  If something -ve has happened I forget about it easily lol!
But, I am not missing work nor the stress involved with it and am having a much better quality of life, so thank my Manager for inadvertently kicking off the "Employer Initiated retirement on the Grounds of Ill Health".

I haven't had my sleeve yet - booked 2nd Feb, and am hoping that the changes in my gut biota caused by the sleeve will be beneficial to my overall health ie my general well being and functionality with ME/CFS and Fibro will improve.

I am basically gluten free, but do have the odd bit, except for Christmas when I had LOTS!! OMG, I do love a good Christmas pudding!  I've also got irritable bowel syndrome and leaky gut syndrome with lots of allergies sensitivities etc.
I usually do a low FODMAP diet.

In the meantime I am doing the 2 cloves freshly crushed raw diet/day to kill of bad bacteria and am having my home made yogurt made with my numerous probiotics to recolonise with good bacteria because your gut has so many functions including immunity, obesity etc .
Post surgery I am planning on having "Alliforce" capsules and having my home made yogurt made with my numerous probiotics.  I am going to talk that over with the Dietitian when I see her.  Also going to ask about gut biota and FODMAPS.

I think that 2015 for me is going to be an absolutely amazing year, and I reckon that I'll emerge out of it  like a butterfly from a chrysalid.

fart
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PC
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Number of posts : 208
Location : Goulburn NSW
Registration date : 2014-06-15

PostSubject: Re: Any other Fibromyalgia people here?   Sat 05 Jul 2014, 6:31 am

I know of people who overcame their Fibromyalgia by changing their diet to exclude all wheat products.  Something about inflammation, especially in people with blood types A and AB. 

I'm not a doctor, and I don't present any scientific evidence, but a week or two of reading food labels and eating something else instead, to find out one way or another, isn't especially difficult.  Not when compared to a lifetime of serious temporary pain meds, doctors visits, tests, more tests, and limited life enjoyment.
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aussiearies
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Number of posts : 894
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Registration date : 2014-03-20

PostSubject: Re: Any other Fibromyalgia people here?   Fri 04 Jul 2014, 2:51 pm

I was diagnosed with Fibro in 1992 and at that time I was the thinnest and healthiest that I had been probably for most of my life and I was a gym junkie.

So I have lived with this for a very long time. Thus I am not convinced that it will go away when I lose weight.

However at the moment I have bursitis in both hips and am in such pain that I often cannot walk with out 2 walking sticks so I am sincerely hoping that this surgery will help and will allow me to exercise again.

I realise that the weight is not helping my pain and is only making it worse so we shall see. To make it worse for me I cannot take strong painkillers.
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MellLS71
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Location : Sydney South West
Registration date : 2014-03-09

PostSubject: Fibromyalgia......hell yeah   Wed 26 Mar 2014, 9:42 am

I was diagnosed with FMS in 1996/97 just before I was married and my weight has ballooned up to 140kg at it's highest since then due in part to the fatigue, muscular spasms, tendonitis, PCOS and IBS that I've struggled with for years. My combined gall bladder and sleeve op is due on 08/04/2014 and I know it's going to help - at least reduce the impact of strain on my joints through committed weight loss and the ongoing nausea of the gall bladder issues!

I've not been taking my meds the last 3 weeks in preparation for the operation, however I've only noticed a minor increase in symptoms - likely because the ketosis is much harder on my body than Fibro. I've already lost 5kg out of my inability to eat much at the moment and the VLCD program which I commenced officially two days ago.

So I guess it will be a wait and see as to how this will assist with fibromyalgia, but I don't think it's a cure!
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Janette
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PostSubject: Re: Any other Fibromyalgia people here?   Tue 14 Jan 2014, 8:27 pm

I as diagnosed with Fibromyalgia 6 months ago, I have been sleeved over 4 years.
 Boggled
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sometimes666
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Location : Great Southern
Registration date : 2013-10-01

PostSubject: Re: Any other Fibromyalgia people here?   Thu 26 Dec 2013, 10:33 am

Hi Winchester's Angel. I was diagnosed with Fibro and chronic fatigue a few years ago. It' been pretty tough and I became very sick prior to my diagnosis and eventually had to stop working full time and move from the metro area to the country to cope. 

I am hoping my sleeve helps with the pain and other symptoms. Even then I don't think FMS magically disappears just from losing weight - there are MANY Fibro sufferers who are within normal weight range.

It's a good idea to join a support group. You can always PM me if you want to chat - I find a lot of people don't 'get it' so I say not too much unless people are genuinely interested in the illness.
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Winchester's Angel
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PostSubject: Any other Fibromyalgia people here?   Thu 21 Nov 2013, 8:34 pm

I've been diagnosed with Fibromyalgia and was wondering if there were any fellow sufferers here.

The rheumatologist has told me that the only way to get real relief from the symptoms is to lose about 50kgs.  Eeech!
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